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blessyourlilheart

My life with psoriatic arthritis

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Good Vibes Only!

Me: I think a terrible thing is happening to me…

My niece: what?

Me: I think I’m becoming a… morning person!

My niece: 😲 …maybe your just in a good mood.

Me: but I have been in one all week…

My niece: maybe it’s your diet

I honestly didn’t believe that it would improve my mood. I hoped it would give me more energy (who doesn’t want that?!) But I wasn’t sure if it would.

I feel great! I don’t really take naps anymore and I actually feel like I could go to the gym. My motivation is more because I saw that sweating gets out toxins but who knows maybe I’ll turn into one of those people who like going to the gym. (Previously thought of as either liars or delusional)

Then I’ll be a morning person and a person who likes working out (insert shock awe and dismay here)


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Positive News!

I was in so much pain I took ibprophen in addition to my anti-inflammatory and it helped! I feel like my old self 💃💃

My doctor said to limit the amount I took but even so I feel so much better.

My psoriasis is a lot better too. Now it still covers me but it doesn’t itch as much and it’s not as red as it normally is. My doctors laugh when I say it’s not that bad because most people would think it was. It’s relative.

I’m still not 100% vegan but it seems to be helping anyway. I got a couple of new cook books for my birthday so I will continue to grow my recipe knowledge!

I also spent more money to get an all natural face moisturizer. My face constantly dries out and looks awful. I learned somewhere that what you put on your skin goes straight into your body. There are no safe guards in your skin like there is with your stomach/gut.

I actually can’t wait to see my dermatologist and see what he thinks. 

Until next time folks! 💋

Update

I still hurt. My doctor says I have tried all but one of the medicines out there. So she’s going with an old non biologic medicine called Methotrexate.

I took it when I was a kid. I couldn’t remember anything that I didn’t write down and we think it hurt my math skills. I was also underweight.

Her answer to my pain was just take more prednisone. I’m up to 20mg now but I still hurt. 

The good news is that I have lost 8 pounds! Steroids make you gain weight so that’s even more fantastic 😁 

I’m still learning what foods to eat and how to put them together but I’m pleased with weight loss. It’s the one thing all my doctors say will help.

Until next time!

Plant Based-ish… So Far

Today is the first day I have felt (mostly) good. I even took a shower! I know that seems like par for the course for most people but when everything hurts I try to stretch out the time between them.

I am not cutting out all meat. We went tailgating Saturday and I had a couple of Cuban sandwiches. They were delicious! 

But other than that I have been eating a lot of her an beans and some steamed veggies. Oh and oatmeal for breakfast.

Tonight I’m going to pick out a recipe to try and buy all of the ingredients. I’m a little worried I won’t get everything I need if I don’t get a variety. So I need to work on that.

I have lost 4 pounds so far. 

Vegan To Be

So I have cut out most meat and dairy. Most being the operative word.

 I was really excited about this then I got overwhelmed.

I don’t cook. It’s why I hated Paleo stuff. And the recipes take so many ingredients.

So my new game plan is:

1. Keep an open mind

2. Use Pinterest to find easy recipes

3. Pick 1 or 2 recipes to try at a time

4. Keep adding vegan meals until my kitchen is stocked and I have more confidence

Maybe this is a slow way but I feel it is right for me. If I get overwhelmed again I may quit so slow and steady it is!

Forks Over Knives?

It’s October and the weather is changing. In response my body is complaining. But this time my finger tips (some not all…yet) are swollen. My left foot is too. 

Is it arthritis? Who knows for sure but I do know that I am too old to say “owie owie owie” every time I take a step.

I hesitate to say I’m going to do something about it because I have before then either didn’t follow through or only did for a short time before giving up.

There is a documentary on Netflix and I watched it last night. It’s so hard to know who is lying. Maybe it’s a little truth and some lies?

In the documentary people tried the plant based diet for 2 weeks and saw results. 14 days isnt that long right? 

So my go to book place is the lovely and free library and I checked out “The Forks Over Knives Plan.”

I’m going to read it. Really read the whole thing and see how I feel about it after. 

Something has to give and wouldn’t it be nice to not have pills and doctors to worry about?!

To be continued…

It is the little things..

I’m going to see my oncologist today. Am I worried that my brain tumor is back? Not exactly. If it is, that means needles. I recently had blood work done for a steroid shot in my hip. It took them 7 tries!! I have had this hope that one day the infrared vein finder thing would come out and I would no longer have to suffer through them trying to find and sometimes dig for a vein. These people shattered that hope into a million pieces because they had one and still had to call someone else in with dopplar to get it. They usually use dopplar after you are asleep. Guess how fun it is when you are awake! Then I spent the weekend worried that they wouldn’t be able to get an IV. They did, thank goodness, and in the first try. Then I had an MRI and they needed to put dye in through a vein. He got it on the 3rd attempt. So no I’m not worried about the big stuff like brain tumors. I’m worried about needles and veins. 

Snowing

Psoriasis sucks , obviously. It is so thick on my scalp that it looks like its snowing when I run my fingers through it. My hair is also falling out at alarming rates. I swept a small mountain of it up from my bathroom floor and I’m pretty sure its the reason my cat was sneezing. He stopped after I vacuumed. I look like I’m sunburned and peeling but I guess it could be worse. I could look diseased!

I tracked the Pinner test and It should come in today! I really hope it works. I think it takes a week to get results.

That being said, though it is still everywhere, the psoriasis layer is thinner than it has been so I’m very happy about that. I started using T-Sal on my scalp and have noticed some results. More sun this weekend and maybe I’ll start to look normal. My doctor thinks I’m funny because I tell him it looks good when most would just cry. When I say it looks good I mean it ccould be worse. You have to roll with the punches. Tears do not make it better and no one wants to be around a whiner.

Pinner test

     My sister cane over with a flyer for a food intolerance test called the Pinner test. It’s really expensive. I went on the website and started to order it then saw the price… $490! So I backed out but they still had my info and called and emailed. Since I didn’t respond they offered a discount. My doctor (the regular family practice one) said she was neutral about it. Since I have been considering this test I have noticed my psoriasis change to an angry red after I eat cheese. It’s a shame because I love cheese.
     My best friend once said I always order the cheesiest thing on the menu. You can’t go wrong if it has a lot of cheese, right? She’s also the one who told me to try paleo. I have seen on some sites that you can have tests done if the AIP doesn’t work or work well. If I can eat something that will make paleo easier without having to add it back in later that’s what I want to do. It could be a waste but my niece’s dietician believed it worked. We shall see!

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